I'd love to hear from you.

Whether you're a family finding your footing, an organizer looking for a speaker, or someone who just wants to say hello — there's a place for you here.

For families

Newly diagnosed, deep in it, or somewhere in between — reach out. You don't have to have the right words.

Speaking & media

Invite me to a keynote, panel, workshop, or podcast — or request my speaker kit for your event.

Just saying hi

Partnerships, collaborations, or a kind word — all welcome. I read everything that comes in.

A note on replies

I read and answer every message myself, so a reply may take a little time — but it will come from me, not a form letter.

Find me online

A gentle but important note

I'm a parent and advocate, not a medical provider. I can't give medical advice or answer clinical questions about your child. If you or your child are facing a medical emergency, please contact your care team or your local emergency services right away. I'm here for everything around the medicine: the navigating, the questions, and the not-feeling-alone.